I have so many questions and don’t know where to find the answers.

You’re not alone—and you don’t have to figure it out all by yourself. Whether you’re looking for support, trying to understand an evaluation, navigating services, or just beginning to explore what neurodiversity means for you or your family, I’m here to help.

Explore the resources below or reach out directly. There are answers, and you deserve ones that make sense for you.

If you’re still uncertain or can’t find what you need, you’re welcome to reach out to me directly.

  • Mental Health & Emotional Support

    • Your therapist, counselor, or psychiatrist: They can help with managing overwhelm, burnout, anxiety, and any mental health concerns.

    • Primary care doctor or specialist: For medication questions, referrals, or general wellness support.

    Personal Support System

    • Trusted family members, friends, or partners: Talk to someone who knows and respects your neurodivergence.

    • Support groups (in-person or online): These can provide connection, validation, and shared coping strategies.

    Systems Navigation

    • Social worker, care coordinator, or case manager: If assigned, they can help with school, work, benefits, housing, or disability services.

    • School/Work contacts: Disability support office (college), HR/ADA coordinator (work), or IEP/504 coordinator (school).

    If You Do Not Have a Support System Yet:

    You can still reach out to the following for starting support and building your network:

    Mental Health & Emotional Support

    • Find a therapist (self-search):

      • Inclusive Therapists – prioritizes neurodivergent-affirming, trauma-informed, and culturally responsive care

      • Psychology Today – filter by autism, sliding scale, telehealth, identity

      • Open Path Collective – affordable therapy ($30–$60/session)

    • In crisis?

      • Call or text 988 – 24/7 Suicide & Crisis Lifeline (U.S.)

      • Crisis Text Line: Text HOME to 741741

      • Local emergency or mental health hotline: In your area, often through a county or state website

    Community and Advocacy Support

    • Autistic-led organizations that affirm identity and offer resources:

      • Autistic Self Advocacy Network (ASAN)

      • NeuroClastic

      • Autism Support Network

    • Online peer spaces: Reddit (e.g., r/Autism), Discord servers, or Facebook groups for autistic adults.

    Practical Help

    • Local Center for Independent Living (CIL): They assist with disability rights, housing, and services.

    • State disability services: Apply for services like Medicaid waivers or case management.

    Daily Living, Disability & Practical Help

    • Find your local Center for Independent Living (CIL):

    • State developmental disability services:

      • Search “[your state] office for developmental disabilities”

      • Can help you apply for Medicaid waivers, case management, or home support (especially if you have high support needs)

    • Find a case manager or advocate:

      • Contact local disability nonprofits or autism foundations

      • Some cities have mental health ombudsmen or disability rights centers

    Educational or Workplace Accommodations (If Needed)

    • College/University?

      • Contact the Disability Services Office to request accommodations.

    • At Work?

      • Contact Human Resources or the ADA coordinator

      • You do not need a formal diagnosis to request accommodations under the ADA

  • (For SSDI/SSI, Medicaid, OPWDD in NY, APD in FL, DDS in NJ)

    I. Licensed Psychologist (PhD or PsyD)

    • Accepted for:

      • Social Security (SSI/SSDI)

      • Medicaid Waivers

      • OPWDD (New York)

      • APD (Florida)

      • DDS (New Jersey Division of Developmental Disabilities)

    • Can do:

      • Full diagnostic evaluations using DSM-5-TR

      • IQ testing (e.g., WAIS, WISC, Stanford-Binet)

      • Adaptive functioning testing (e.g., Vineland, ABAS)

      • Documentation required for state disability eligibility

    • Notes:

      • Often has longer waitlists

      • Can be expensive unless covered by insurance or state programs

    II. Psychiatrist (MD or DO)

    • Accepted for:

      • SSI/SSDI

      • Medicaid (general)

      • May be accepted as supporting documentation for OPWDD, DDS, or APD

    • Can do:

      • Diagnosis of autism and/or ADHD

      • Prescribe medication

      • Write summary letters of clinical findings

    • Limitations:

      • Typically does not conduct IQ or adaptive testing

      • Documentation alone often not sufficient for DDS/OPWDD/APD

    III. Licensed Clinical Social Worker / Mental Health Counselor (LCSW, LMHC, LPC)

    • May support:

      • Medicaid services

      • SSI/SSDI (as supporting evidence)

    • Can do:

      • Diagnosis in many states

      • Provide documentation of therapy history and functional limitations

    • Limitations:

      • Reports usually not accepted alone for DDS, OPWDD, or APD

      • May need to refer out for psychological testing

    IV. SSA-Scheduled Consultative Exam (CE)

    • Accepted for:

      • SSI/SSDI only

    • Can do:

      • Brief diagnostic assessment scheduled by SSA if you don’t have documentation

    • Limitations:

      • Not comprehensive

      • Not valid for DDS (NJ), OPWDD (NY), or APD (FL)

      • You don’t choose the provider

    What Must Be Included in Your Evaluation (For All Programs)

    1. DSM-5-TR Diagnosis

      • Clear diagnosis of Autism Spectrum Disorder and/or ADHD

    2. Onset Before Age 22

      • Required by DDS (NJ), OPWDD (NY), APD (FL), and Medicaid waiver programs

    3. Standardized Testing Results

      • Cognitive: WAIS-IV, WISC-V, Stanford-Binet

      • Adaptive: Vineland-3, ABAS-3

    4. Functional Limitations in Daily Life

      • Documented impairments in:

        • Social skills

        • Self-care or daily living

        • Executive functioning

        • Communication

    5. Evaluator Credentials

      • Must be a licensed psychologist or qualified physician for DDS, OPWDD, or APD approval

  • 1. Know Your Rights

    • You are protected by:

      • The ADA (Americans with Disabilities Act)

      • Section 504 of the Rehabilitation Act

      • IDEA (for K–12 students with IEPs)

      • FMLA (for medical leave)

      • State disability agencies, such as:

        OPWDD-NY

        DDS-NJ

        APD-FL

    2. Clarify Your Needs

    • Identify areas where you experience challenges (e.g., sensory sensitivity, executive functioning, social communication, etc.)

    • Think about what supports would help you participate fully

    • Examples of accommodations:

      • Flexible schedule or deadlines

      • Sensory-friendly environment

      • Written vs. verbal communication

      • Extended test time or alternative formats

    3. Gather Documentation (If Needed)

    • You do not always need to disclose your exact diagnosis

    • Documentation usually just needs to:

      • State that you have a disability

      • Describe how it functionally impacts you

      • List or recommend accommodations

    • A healthcare provider, evaluator, or therapist can write this

    4. Make Your Request in Writing

    • Include:

      • A statement that you’re requesting accommodations under the ADA (or Section 504)

      • A brief explanation of how your condition affects your ability to perform tasks

      • The specific accommodations you’re requesting

    5. Send It to the Right Contact

    • Employment: Human Resources or ADA Coordinator

    • College/University: Disability Services or Access Center

    • K–12 School: 504 or IEP coordinator

    • Government Services (OPWDD, APD, DDS): Submit as part of application or speak to your assigned service coordinator

    6. Keep a Record & Follow Up

    • Save emails, letters, and forms

    • Document names, dates, and decisions

    • If denied, request the denial in writing and ask about appeal options

    Do I Have to Disclose My Diagnosis?

    • Short Answer: No, not always.

    • Under the ADA, you are only required to:

      • Establish that you have a disability (a condition that substantially limits one or more major life activities)

      • Explain how it affects your functioning

      • Show why the accommodation is needed

    • You do not have to name your diagnosis (like “autism” or “ADHD”) unless a specific agency or process requires it (e.g., Social Security Disability or OPWDD/Medicaid eligibility often does).

    1. Workplace Accommodation Request (Without Naming Diagnosis)

    https://askjan.org/

    Subject: Request for Reasonable Accommodations

    Dear [Supervisor/HR/ADA Coordinator],

    I am writing to formally request reasonable accommodations under the Americans with Disabilities Act (ADA). I experience a disability that impacts [describe the area of difficulty, e.g., concentration, sensory regulation, communication, executive functioning].

    To support my ability to perform my job effectively and sustainably, I am requesting the following accommodations:

    · [List accommodation #1]

    · [List accommodation #2]

    I am happy to provide supporting documentation if needed. Please let me know the next steps in this process.

     Thank you for your time and consideration.

    Sincerely,

    [Your Name]

    2. College or University Disability Services (With or Without Diagnosis)

    Subject: Request for Academic Accommodations

    Dear [Disability Services Coordinator’s Name],

     I am a student at [University Name] and would like to request reasonable academic accommodations under Section 504 of the Rehabilitation Act and the Americans with Disabilities Act.

     I experience a condition that significantly affects [e.g., focus, sensory processing, social interaction, task management]. To ensure equal access to my education, I am requesting accommodations such as:

    · [List accommodation #1]

    · [List accommodation #2]

     I can provide documentation from my healthcare provider or evaluator to support my request. Please let me know the appropriate process and any forms I should complete.

    Thank you for your support.

    Sincerely,

    [Your Name]

    [Student ID, if applicable]

    3. Disability Services (e.g., OPWDD in NY, APD in FL, DDS in NJ)

    *Contact your state agency first to determine if there is an option to apply online.

    Subject: Request for Disability Accommodations and Services

    Dear [Agency or Coordinator’s Name],

    I am seeking support through [name of agency] due to long-standing challenges with [brief description, e.g., communication, executive functioning, emotional regulation, or other life skills]. These challenges significantly affect my ability to live independently and access services.

    I am requesting:

    · An eligibility evaluation or intake appointment

    · Support with applying for [Medicaid Waiver/Residential Services/Day Programs/etc.]

    · Accommodations to help me understand and navigate the process (e.g., plain language communication, support person present, extra processing time)

     I am open to providing documentation from a qualified provider and would like to know what is needed. Thank you for your assistance.

     Sincerely,

    [Your Name]

    [DOB, Address, or other required ID info]

  • What an LCSW Evaluation Can Be Used For

    • Clinical Treatment Planning

    Individual, family, or couples therapy

    Psychiatric referrals

    Case management or coordination of care

    • Personal Understanding / Self-Knowledge

    Identity development (e.g., understanding neurodivergence)

    Communication tools for family, partners, employers

    Accessing affirming coaching or peer support groups

    • Accommodations

    Workplace (ADA):

    Flexible schedule

    Sensory supports

    Modified communication expectations

    College or Grad School:

    Extended test time

    Reduced-distraction setting

    Disability Resource Center services

    Standardized Exams:

    GRE, LSAT, MCAT, BAR, etc. accommodations

    Insurance & Private Services:

    Therapy or psychiatry referrals

    Documentation for ADHD medication (depending on prescriber)

    Reimbursement for out-of-network services

    Community Programs:

    Neurodivergent support groups

    Social communication programs

    Community mental health resources

     What It May Not Be Accepted For — or May Require Additional Evaluation

    • School-Based Services (IEP or 504 Plan)

    Often requires school psychologist or multidisciplinary team evaluation

    • Social Security Disability (SSI/SSDI)

    Usually needs documentation from a psychologist or physician (PhD/MD)

    • State Developmental Disability Services

    Examples:

    • OPWDD=NY

    • DDS-NJ

    • APD-FL 

    -Typically require diagnostic evaluation by a licensed psychologist or MD

    -May require tools like ADOS, cognitive testing, or Vineland

    • Psychoeducational or Neuropsychological Testing

    Cognitive/IQ testing and learning disorder diagnosis must be done by a licensed psychologist or neuropsych

Questions

Questions