I have so many questions and don’t know where to find the answers.
You’re not alone—and you don’t have to figure it out all by yourself. Whether you’re looking for support, trying to understand an evaluation, navigating services, or just beginning to explore what neurodiversity means for you or your family, I’m here to help.
Explore the resources below or reach out directly. There are answers, and you deserve ones that make sense for you.
If you’re still uncertain or can’t find what you need, you’re welcome to reach out to me directly.
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Mental Health & Emotional Support
Your therapist, counselor, or psychiatrist: They can help with managing overwhelm, burnout, anxiety, and any mental health concerns.
Primary care doctor or specialist: For medication questions, referrals, or general wellness support.
Personal Support System
Trusted family members, friends, or partners: Talk to someone who knows and respects your neurodivergence.
Support groups (in-person or online): These can provide connection, validation, and shared coping strategies.
Systems Navigation
Social worker, care coordinator, or case manager: If assigned, they can help with school, work, benefits, housing, or disability services.
School/Work contacts: Disability support office (college), HR/ADA coordinator (work), or IEP/504 coordinator (school).
If You Do Not Have a Support System Yet:
You can still reach out to the following for starting support and building your network:
Mental Health & Emotional Support
Find a therapist (self-search):
Inclusive Therapists – prioritizes neurodivergent-affirming, trauma-informed, and culturally responsive care
Psychology Today – filter by autism, sliding scale, telehealth, identity
Open Path Collective – affordable therapy ($30–$60/session)
In crisis?
Call or text 988 – 24/7 Suicide & Crisis Lifeline (U.S.)
Crisis Text Line: Text HOME to 741741
Local emergency or mental health hotline: In your area, often through a county or state website
Community and Advocacy Support
Autistic-led organizations that affirm identity and offer resources:
Autistic Self Advocacy Network (ASAN)
NeuroClastic
Autism Support Network
Online peer spaces: Reddit (e.g., r/Autism), Discord servers, or Facebook groups for autistic adults.
Practical Help
Local Center for Independent Living (CIL): They assist with disability rights, housing, and services.
State disability services: Apply for services like Medicaid waivers or case management.
Daily Living, Disability & Practical Help
Find your local Center for Independent Living (CIL):
https://www.ilru.org/projects/cil-net/cil-center-and-association-directory
Free support for people with disabilities: housing, benefits, job help, advocacy
State developmental disability services:
Search “[your state] office for developmental disabilities”
Can help you apply for Medicaid waivers, case management, or home support (especially if you have high support needs)
Find a case manager or advocate:
Contact local disability nonprofits or autism foundations
Some cities have mental health ombudsmen or disability rights centers
Educational or Workplace Accommodations (If Needed)
College/University?
Contact the Disability Services Office to request accommodations.
At Work?
Contact Human Resources or the ADA coordinator
You do not need a formal diagnosis to request accommodations under the ADA
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(For SSDI/SSI, Medicaid, OPWDD in NY, APD in FL, DDS in NJ)
I. Licensed Psychologist (PhD or PsyD)
Accepted for:
Social Security (SSI/SSDI)
Medicaid Waivers
OPWDD (New York)
APD (Florida)
DDS (New Jersey Division of Developmental Disabilities)
Can do:
Full diagnostic evaluations using DSM-5-TR
IQ testing (e.g., WAIS, WISC, Stanford-Binet)
Adaptive functioning testing (e.g., Vineland, ABAS)
Documentation required for state disability eligibility
Notes:
Often has longer waitlists
Can be expensive unless covered by insurance or state programs
II. Psychiatrist (MD or DO)
Accepted for:
SSI/SSDI
Medicaid (general)
May be accepted as supporting documentation for OPWDD, DDS, or APD
Can do:
Diagnosis of autism and/or ADHD
Prescribe medication
Write summary letters of clinical findings
Limitations:
Typically does not conduct IQ or adaptive testing
Documentation alone often not sufficient for DDS/OPWDD/APD
III. Licensed Clinical Social Worker / Mental Health Counselor (LCSW, LMHC, LPC)
May support:
Medicaid services
SSI/SSDI (as supporting evidence)
Can do:
Diagnosis in many states
Provide documentation of therapy history and functional limitations
Limitations:
Reports usually not accepted alone for DDS, OPWDD, or APD
May need to refer out for psychological testing
IV. SSA-Scheduled Consultative Exam (CE)
Accepted for:
SSI/SSDI only
Can do:
Brief diagnostic assessment scheduled by SSA if you don’t have documentation
Limitations:
Not comprehensive
Not valid for DDS (NJ), OPWDD (NY), or APD (FL)
You don’t choose the provider
What Must Be Included in Your Evaluation (For All Programs)
DSM-5-TR Diagnosis
Clear diagnosis of Autism Spectrum Disorder and/or ADHD
Onset Before Age 22
Required by DDS (NJ), OPWDD (NY), APD (FL), and Medicaid waiver programs
Standardized Testing Results
Cognitive: WAIS-IV, WISC-V, Stanford-Binet
Adaptive: Vineland-3, ABAS-3
Functional Limitations in Daily Life
Documented impairments in:
Social skills
Self-care or daily living
Executive functioning
Communication
Evaluator Credentials
Must be a licensed psychologist or qualified physician for DDS, OPWDD, or APD approval
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1. Know Your Rights
You are protected by:
The ADA (Americans with Disabilities Act)
Section 504 of the Rehabilitation Act
IDEA (for K–12 students with IEPs)
FMLA (for medical leave)
State disability agencies, such as:
OPWDD-NY
DDS-NJ
APD-FL
2. Clarify Your Needs
Identify areas where you experience challenges (e.g., sensory sensitivity, executive functioning, social communication, etc.)
Think about what supports would help you participate fully
Examples of accommodations:
Flexible schedule or deadlines
Sensory-friendly environment
Written vs. verbal communication
Extended test time or alternative formats
3. Gather Documentation (If Needed)
You do not always need to disclose your exact diagnosis
Documentation usually just needs to:
State that you have a disability
Describe how it functionally impacts you
List or recommend accommodations
A healthcare provider, evaluator, or therapist can write this
4. Make Your Request in Writing
Include:
A statement that you’re requesting accommodations under the ADA (or Section 504)
A brief explanation of how your condition affects your ability to perform tasks
The specific accommodations you’re requesting
5. Send It to the Right Contact
Employment: Human Resources or ADA Coordinator
College/University: Disability Services or Access Center
K–12 School: 504 or IEP coordinator
Government Services (OPWDD, APD, DDS): Submit as part of application or speak to your assigned service coordinator
6. Keep a Record & Follow Up
Save emails, letters, and forms
Document names, dates, and decisions
If denied, request the denial in writing and ask about appeal options
Do I Have to Disclose My Diagnosis?
Short Answer: No, not always.
Under the ADA, you are only required to:
Establish that you have a disability (a condition that substantially limits one or more major life activities)
Explain how it affects your functioning
Show why the accommodation is needed
You do not have to name your diagnosis (like “autism” or “ADHD”) unless a specific agency or process requires it (e.g., Social Security Disability or OPWDD/Medicaid eligibility often does).
1. Workplace Accommodation Request (Without Naming Diagnosis)
Subject: Request for Reasonable Accommodations
Dear [Supervisor/HR/ADA Coordinator],
I am writing to formally request reasonable accommodations under the Americans with Disabilities Act (ADA). I experience a disability that impacts [describe the area of difficulty, e.g., concentration, sensory regulation, communication, executive functioning].
To support my ability to perform my job effectively and sustainably, I am requesting the following accommodations:
· [List accommodation #1]
· [List accommodation #2]
I am happy to provide supporting documentation if needed. Please let me know the next steps in this process.
Thank you for your time and consideration.
Sincerely,
[Your Name]
2. College or University Disability Services (With or Without Diagnosis)
Subject: Request for Academic Accommodations
Dear [Disability Services Coordinator’s Name],
I am a student at [University Name] and would like to request reasonable academic accommodations under Section 504 of the Rehabilitation Act and the Americans with Disabilities Act.
I experience a condition that significantly affects [e.g., focus, sensory processing, social interaction, task management]. To ensure equal access to my education, I am requesting accommodations such as:
· [List accommodation #1]
· [List accommodation #2]
I can provide documentation from my healthcare provider or evaluator to support my request. Please let me know the appropriate process and any forms I should complete.
Thank you for your support.
Sincerely,
[Your Name]
[Student ID, if applicable]
3. Disability Services (e.g., OPWDD in NY, APD in FL, DDS in NJ)
*Contact your state agency first to determine if there is an option to apply online.
Subject: Request for Disability Accommodations and Services
Dear [Agency or Coordinator’s Name],
I am seeking support through [name of agency] due to long-standing challenges with [brief description, e.g., communication, executive functioning, emotional regulation, or other life skills]. These challenges significantly affect my ability to live independently and access services.
I am requesting:
· An eligibility evaluation or intake appointment
· Support with applying for [Medicaid Waiver/Residential Services/Day Programs/etc.]
· Accommodations to help me understand and navigate the process (e.g., plain language communication, support person present, extra processing time)
I am open to providing documentation from a qualified provider and would like to know what is needed. Thank you for your assistance.
Sincerely,
[Your Name]
[DOB, Address, or other required ID info]
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What an LCSW Evaluation Can Be Used For
Clinical Treatment Planning
Individual, family, or couples therapy
Psychiatric referrals
Case management or coordination of care
Personal Understanding / Self-Knowledge
Identity development (e.g., understanding neurodivergence)
Communication tools for family, partners, employers
Accessing affirming coaching or peer support groups
Accommodations
Workplace (ADA):
Flexible schedule
Sensory supports
Modified communication expectations
College or Grad School:
Extended test time
Reduced-distraction setting
Disability Resource Center services
Standardized Exams:
GRE, LSAT, MCAT, BAR, etc. accommodations
Insurance & Private Services:
Therapy or psychiatry referrals
Documentation for ADHD medication (depending on prescriber)
Reimbursement for out-of-network services
Community Programs:
Neurodivergent support groups
Social communication programs
Community mental health resources
What It May Not Be Accepted For — or May Require Additional Evaluation
School-Based Services (IEP or 504 Plan)
Often requires school psychologist or multidisciplinary team evaluation
Social Security Disability (SSI/SSDI)
Usually needs documentation from a psychologist or physician (PhD/MD)
State Developmental Disability Services
Examples:
OPWDD=NY
DDS-NJ
APD-FL
-Typically require diagnostic evaluation by a licensed psychologist or MD
-May require tools like ADOS, cognitive testing, or Vineland
Psychoeducational or Neuropsychological Testing
Cognitive/IQ testing and learning disorder diagnosis must be done by a licensed psychologist or neuropsych